Little bit of time between posts.

It has been a little time between posts.
There has been a little bit going on.
I have had to go and see a Psychiatrist.
My Income Protection Insurance Company directed me to go and see this Doctor for him to assess me.
Wow, it was a marathon 3 hours.
I was not prepared for the 3 hours as they did not tell me.
Total crash after it. Took me a few days to get back on my feet.
So after fighting my way back, I then had to get my blood pressure monitored as it was all over the place like a mad woman's breakfast.
I had it fitted and then went home to return the next day to have it removed.
Well, I lasted till 1am with it on.
Every 30 minutes the machine took my blood pressure.
Due to the pressure placed on my arm combined with my fibromyalgia/M.E. my arm swelled to twice it's size and was so painful.
To cut a long painful story short, after many Epsom salt baths, constantly using a T.E.N.'s machine, using pain relief and not sleeping due to pain for a few days.....................my wonderful acupuncturist moved the fluid and the fibro lumps.
The arm took about 4 days to go down.
So all in all, it has not been a bed of roses, but it could always be worse.
I have to see an Occupational Physician next as directed by the insurance company.
I guess they are just doing their job....... but geeeeeeezzzzzzzzz. I want to be back at work. I want to have my old life back.
They just don't understand................and to tell you the truth..... I wish I understood this disease and could fix myself.
As my mum says......"Don't sweat what you cannot change"

Sometimes find myself grieving for the things I have lost.

When lying in my bed and thinking of all the friends that have fallen by the way side due to my illness and inability to keep in touch......... I do feel sad.
There are many things I have had to grieve over. I just hope that I can get through this dreaded illness and come out the other side stronger.

Sharing as this sums up sooooooooooo much

This is so true and exactly how I feel.
Kudos to the author. I have attached the link below.
http://patienttalk.org/i-dont-look-sick-please-share-this-brilliant-graphic-from-donnee-spencer-telling-us-about-life-with-am-invisible-illness/

To have my old life back would be a dream come true...............

Pain levels v Prescription drugs.......................................

I have to admit, I have been struggling over the last few weeks with pain levels.
I find myself getting cranky and short tempered with the one's I love and then realise it is because I just try and ignore the pain and hope it will just go away.
One positive thing that has happened is my acupuncturist put me on to using a pilates roller.
It hurts like hell when rolling into a spot that has a fibromyalgia lump but after you break through that pain barrier and work the fluid out...... the relief then comes.
I find it especially helpful for my hips, neck and shoulder areas.
The T.E.N's machine also assists.
This afternoon I did both. It took me 2 and a 1/2 hours to get through it all but maybe I will be able to sleep tonight.
My husband has gone for a motorbike ride this evening. I feel bad sometimes that I have no energy to have a normal relationship with my husband like we used to have pre- CFS/ME.
I will get back to normality sometime soon I hope.
I just want my life back, to be able to work, to see my friends, to go and see a band with my husband, to laugh, love and live a fabulous life.
One Day................